Agenda Discovery Week Month

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Hands-On Strategies for Hyperarousal in Fragile X Syndrome

Fragile X Families of Phoenix and Fragile X of Northern Arizona
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Endorsed by Curators:
Dec 02 8:00AM - 4:00PM

Hands-On Strategies for Hyperarousal in Fragile X Syndrome

Tracy Murnan Stackhouse, MA, OTR

Sarah (Mouse) Scharfenaker, MA, CCC-SLP

Co-Founders Developmental FX Denver, Colorado

Course Overview


8:00 - 8:30: Registration and coffee

8:30 8:45: Welcome and Introductions

8:45 - 9:30: What is Fragile X? Resources here in Phoenix Robin Blitz, MD

9:30 -10:45: Setting the groundwork: Understanding the Fragile X Learning Style; Motor planning and imitation in Fragile X.

10:45 - 11:00: BREAK

11:00 - 12:00: Hands-On hyperarousal experience; What is hyperarousal?

12:00 - 1:00: LUNCH (Provided)

1:00 2:30 Sensory, Routines and Language based strategies for home, school and beyond.

2:30-2:45: Break

2:45 4:00 Hands-On! Practice sensory, routines and language based strategies and create several to take home.

This course will provide an overview of hyperarousal in Fragile X Syndrome (FXS), from biology to behavior, followed by a lively discussion of strategies to proactively integrate into life to keep hyperarousal at a minimum. A focus on the best strategies that help across ages and states of life to reduce hyperarousal and make living with fragile x so much easier. We will practice strategies and ensure you leave feeling equipped to better address anxiety and hyperarousal i day to day life. Sensory, routines, language and relationship based strategies will be discussed, as will characteristics of the learning style specific to FXS. Hands-On activities will include practicing many of these strategies and actually creating a few supports to take home for your family!

About the Presenters Tracy Murnan Stackhouse, MA, OTR, Tracy is co-founder of Developmental FX

(a non-profit organization dedicated to assessment, research, resource development, and treatment in the Fragile X and neurodevelopmental areas). She is a leading pediatric occupational therapist (OT) involved in clinical treatment, research, mentoring, and training regarding OT intervention for persons with neurodevelopmental disorders, especially Fragile X Syndrome and autism. She received her undergraduate degree in occupational therapy from Colorado State University and a masters degree in developmental psychology from the University of Denver. She received her NDT training with Lois Bly. She is SIPT Certified (Sensory Integration and Praxis Test) and was the clinical specialist in sensory integration at The Childrens Hospital in Denver as well as the OT for the Fragile X Research and Treatment Center. Tracy continued her clinical and research work with Dr. Randi Hagerman at the UC Davis M.I.N.D. Institute during its start-up year. Tracy has written several book chapters on sensory integration and neurodevelopmental disorders, and teaches and consults nationally and internationally on sensory integration, Fragile X and related topics.

Sarah Scharfenaker, MA, CCC-SLP, Sarah, fondly known as Mouse, is co-founder of Developmental FX. She has worked in the fields of Fragile X Syndrome and neurodevelopmental disorders for more than 25 years. She received both her undergraduate and graduate degrees from the University of Montana, Missoula. She provided speech pathology services to the Denver Fragile X Treatment and Research

Center at The Childrens Hospital and accompanied Dr. Randi Hagerman to the UC Davis M.I.N.D. Institute to initiate its program. Mouse has published many chapters and articles on intervention for Fragile X, and consults and teaches nationally and internationally. Her special connection with children and adults as well as her extensive expertise allow her to bring a depth to her work that is unmatched and well-remembered by those who have seen her.

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