Endorsed by Curators:
We are thrilled to announce our 2nd Annual von Willebrands Retreat. This event is focused solely on families living von Willebrands Disease (VWD). Developed with community feedback, this retreat is led by professional facilitators and Hemophilia Treatment Center (HTC) partners. The retreat is intended to provide community members living with vWD a chance to learn, network, and ask questions in a more focused setting. Siblings are welcome to attend. A formal agenda will be sent out to registered attendees closer to the event.
Please note that registration will close on Friday, October 18.
Frequently Asked Questions
Q. Do you have a room block?
Yes, we have a room block for Friday, November 8 at $199 per night for a double. To book a room, click below or call (860) 409-6110 and reference the "New England Hemophilia" block. You must book a room by Tuesday, October 8, 2019.Click this link to book a room: https://www.marriott.com/events/start.mi?id=1569250720580&key=GRP
Q. Who is this event open to?
This event is open to those who have von Willebrands or are parent or sibling of someone with von Willebrands. There will be childcare, a youth track, a teen track and an adult track.
Q: Is childcare available at this event?
Yes, childcare will be available at no additional cost.
Q: Who can attend this event?
You must be a 2019 NEHA member to attend this event.Click here to become a 2019 member.Please note, if you are registered but can no longer attend, please notify usimmediately.If a cancellation occurs within 72 hours of the event, youwill be charged with a $30 per person fee.
Q. Does NEHA offer financial assistance?
Yes, if you are travel over 100 miles roundtrip, you are eligible for the $100 for 100 miles program. Requesting this assistance is now easier than ever before. Simply click here to fill out the form on our new website.
Q. How do I learn more about NEHA?
Go towww.newenglandhemophilia.orgor call us at 781-326-7645.